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Medical Advocacy: Get the Care You Deserve

Women's health concerns are too often dismissed, minimized, or attributed to stress. You deserve to be heard, to have your symptoms investigated properly, and to receive evidence-based treatment. These scripts and strategies will help you advocate effectively in medical settings.

Why Medical Advocacy Matters

Research Shows the Problem

Women wait an average of 7-10 years for an endometriosis diagnosis, often seeing multiple doctors who dismiss their pain.

Women are less likely than men to receive pain medication and more likely to have symptoms attributed to mental health.

PCOS takes an average of 2+ years and 3+ doctors to diagnose despite affecting 1 in 10 women.

You're Not Imagining It

If you've been told your symptoms are 'normal' or 'just stress' despite significant impact on your life, that's dismissal.

If you've been made to feel like you're overreacting to severe pain, that's inadequate care.

You deserve better, and these tools will help you get it.

Advocacy Works

Clear communication about symptom impact increases the likelihood of appropriate testing.

Prepared, specific questions help providers understand what you need and make it harder to dismiss your concerns.

Knowing when to seek a second opinion can be the difference between suffering and proper treatment.

Red Flags: Signs of Medical Dismissal

These are warning signs that your concerns aren't being taken seriously. If you encounter these, it's time to advocate more strongly or find a new provider.

Your symptoms are dismissed without examination or testing

Why this matters: Physical examination and appropriate testing are standard of care for new or changing symptoms

You're told it's 'all in your head' or 'just anxiety'

Why this matters: While mental health can affect physical symptoms, physical causes must be ruled out first

Your pain is normalized or minimized

Why this matters: Severe pain that disrupts daily life is never 'normal' and deserves investigation

Provider refuses to order requested tests without explanation

Why this matters: You deserve to understand why tests aren't being ordered if symptoms suggest they might be helpful

You're made to feel like you're overreacting or being difficult

Why this matters: Advocating for your health is not being difficult—it's being responsible

Birth control is the only solution offered without discussing alternatives

Why this matters: While hormonal contraception can help many conditions, it's not always appropriate and alternatives exist

Advocacy Scripts

Copy these word-for-word or adapt them to your situation. The goal is to be clear, specific, and persistent without being confrontational. You're asking for standard care, not special treatment.

Being Dismissed as 'Just Stress'
When your symptoms are attributed solely to stress or anxiety without proper investigation

What to say:

I understand that stress can affect health, but I've been experiencing [specific symptoms] for [duration], and they're significantly impacting my quality of life. I'd like to rule out hormonal conditions like PCOS, thyroid dysfunction, or perimenopause. Can we discuss testing options and potential treatments?

Follow-up question:

If these symptoms persist despite stress management, what would be the next step in our diagnostic process?

Told 'Your Labs Are Normal'
When test results come back 'normal' but you still have symptoms

What to say:

I appreciate that my results fall within the reference range, but I'm still experiencing debilitating symptoms. Can we discuss where I fall within that range? Sometimes 'normal' doesn't mean 'optimal.' I'd also like to know what other conditions could cause these symptoms if it's not [condition discussed].

Follow-up question:

Would it be helpful to retest at a different point in my cycle, or are there other tests we should consider?

'You're Too Young for Perimenopause'
Being told you're too young to be experiencing hormonal changes

What to say:

I understand perimenopause typically begins in the mid-40s, but it can start in the late 30s or early 40s for some women. I'm experiencing [list symptoms: irregular cycles, hot flashes, mood changes, sleep problems]. I'd like to rule out premature ovarian insufficiency and discuss whether early perimenopause could explain my symptoms.

Follow-up question:

If it's not perimenopause, what other hormonal conditions could cause this constellation of symptoms?

Pain Being Minimized
When period pain or pelvic pain is dismissed as 'normal' or 'just cramps'

What to say:

I've been told this is normal period pain, but it's preventing me from working/functioning for [X days per month]. Pain that interferes with daily life isn't normal. I'd like to be evaluated for endometriosis, adenomyosis, or fibroids. What diagnostic steps can we take?

Follow-up question:

If imaging doesn't show anything, would a referral to a gynecologist or pain specialist be appropriate?

Requesting Specific Tests
When you need to ask for tests that haven't been offered

What to say:

Based on my symptoms of [list symptoms], I've read that testing for [specific tests: thyroid panel, PCOS markers, hormone levels] could be helpful. Can we discuss whether these tests would be appropriate for my situation?

Follow-up question:

If you don't think these tests are necessary, can you explain what you're looking for instead?

Seeking a Second Opinion
When you're not satisfied with your current care

What to say:

I appreciate your input, but I'd like to get a second opinion about my symptoms. Could you provide my medical records and test results so I can share them with another provider? I'm looking for [specialist type: reproductive endocrinologist, menopause specialist, etc.].

Follow-up question:

Can you recommend someone, or should I find a specialist on my own?

'Just Lose Weight'
When weight is blamed without addressing underlying conditions

What to say:

I understand weight can affect hormonal health, but I'd like to rule out conditions that could be causing both weight gain and my other symptoms. PCOS, thyroid problems, and insulin resistance can make weight loss difficult. Can we test for these conditions first?

Follow-up question:

If I do have an underlying condition, treating it should make weight management more effective, correct?

Requesting Treatment Options
When you want to discuss treatments beyond 'wait and see'

What to say:

I'd like to discuss treatment options for my symptoms rather than just monitoring them. My symptoms are affecting my [work, relationships, mental health, daily functioning]. What are the options—both hormonal and non-hormonal—for managing [specific symptoms]?

Follow-up question:

What are the potential benefits and risks of each option for someone with my medical history?

How to Prepare for Your Appointment

Preparation increases your chances of being heard and getting appropriate care. Here's what to do before, during, and after your medical appointments.

Before Your Appointment
  • Track symptoms for 2-3 months (frequency, severity, timing in your cycle)
  • List all current medications and supplements with dosages
  • Note what you've already tried and whether it helped
  • Write down your main concerns in order of priority
  • Prepare specific questions you want answered
  • Bring previous test results if you have them
  • Know your family health history (especially reproductive health)
During Your Appointment
  • Start with your most important concern—don't bury the lead
  • Be specific about how symptoms affect your daily life
  • Use concrete examples: 'I miss work 2 days per month' vs. 'It's bad'
  • Take notes or ask if you can record the conversation
  • Ask for clarification if something isn't clear
  • If dismissed, use the advocacy scripts below
  • Get a printed summary of the visit and any test orders
After Your Appointment
  • Review your notes while the conversation is fresh
  • Follow up on any promised test orders within a few days
  • Note the timeline for when you should hear results
  • If you didn't get answers, consider whether to follow up or seek a second opinion
  • Document any concerning interactions (dismissal, refusal to test, etc.)

When to Seek a Second Opinion or New Provider

Clear Signs It's Time
  • Your provider consistently dismisses your concerns without examination or testing
  • You've used advocacy scripts and still aren't being heard
  • You feel rushed, judged, or blamed during appointments
  • Your symptoms have persisted or worsened without explanation
  • Your symptoms are repeatedly attributed to 'just stress'
How to Find Better Care
  • Look for providers who specialize in your concern (reproductive endocrinologist for PCOS/endo, menopause specialist for perimenopause)
  • Read reviews specifically mentioning how patients feel heard
  • Ask in condition-specific support groups for provider recommendations
  • During first visit, assess whether they listen, examine, and explain
  • Don't be afraid to try multiple providers until you find the right fit

Related Resources

Testing Guide
Know what to ask for and how to interpret results
Symptom Tracking
Document patterns to strengthen your case
Condition Pages
Understand your diagnosis and treatment options